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Like you point out, its always wise to be vigilant after surgery for things that might be amiss.and get checked out. Search Hospitals, Join 375,000+ Patientsat Our Facebook Page Click here, HeartValveSurgery.com 2785 Pacific Coast Hwy, #517 Torrance, CA 90505 Phone: (888) 725-4311, 2023 HeartValveSurgery.com. Thank you for your expert opinion. Yesterday, for example, I spoke with a 71-year old patient who just had aortic valve replacement surgery due to this . "I am lucky to be here.". I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. I have been feeling better than before the surgery and I feel with better condition on the trails. She is afraid, I can understand that. Could you please give me an insight into what else could be causing these chronic episodes of shortness of breathe, lightheadedness and off-on chest pains. I was to the understanding that the aneurysms caused in bav patients was due to the problematic bav valve causing uneven blood flow to cause uneven pressure on the aorta. You might be wondering, with no disrespect to the great people of Cleveland, why Schwarzenegger, who surely has access to the finest hospitals under the sun, would choose to have surgery there. No thrombus, vegetation were noted In fact, like most people, the 25-year-old had never heard the term before. Thats about as specific as he got. There is not much scientific evidence about what to expect. And my doctor do not give me responsive and exact answer to my questions regarding sports. Bicuspid aortic valve (BAV) disease is the most common congenital heart defect, as it affects 1.3% of the adult general population . My resting pulse is 55 and BP 115/82. As chemist mostly works in a lab not in the field. Hi Dr Creswell, For example, his spurt in enlargement happens to coincide with his spurt in growth. E. G. I could bench 50lbs with no need to strain and hold my breath, which wouldnt result in a massive spike in blood pressure, but if I tried to bicep curl 50lbs it would do. If labeling my fitness level I wouldnt use the term athlete, but I used to work out pretty vigorously 5 days a week until about 8 months ago (weights, medium endurance cardio, no longer distance running than 5 miles, interspersed with HIIT). . No LA, RA, RV, chamber dilation Valve replacement with either a tissue (bioprosthetic) valve or a mechanical valve is, by far, more common. Would this constitute as too much in your opinion ? 2. However, I absolutely love being competitive at running, and dont want to jeopardize that either. My cardiologist has told me that, based on how my heart sounds, he doesnt think hell ever have to operate on me. 3. I have 5 children, so I dont want to drop dead and leave my poor wife with them all to look after on her own. We briefly talked about the Ross procedure vs mechanical valve replacement. This was caused by an aneurysm in the ascending aorta (root) that measured over 6 centimeters). Do you opration? Athletes in this circumstance should collect opinions from their doctor(s) and make very careful considerations before returning to exercise. This can cause the valve to malfunction and prevent blood from flowing correctly from the . Ive done so much research and there are lots of young people who have went on to play sports and lead normal lifes. And lastly, the degree of healing in the remaining (unoperated) aorta probably has a big impact on the potential risk. To me, cardiologists are not sports people and air on being absolutely over cautious. Jeff. Just double checking. Aortic enlargement in patients whove had valve replacement for BAV can be a vexing problem. He posed next to statues of Thomas Jefferson, Jesse Owens (whose family moved to Cleveland when he was nine, and who later attended The Ohio State University), and Abraham Lincoln. I have severe aortic stenosis with no signs or symptoms. Athletes should have detailed discussion with their doctors about any prudent limitations to exercise after operation and settle on a mutually agreeable plan. Be specific. But if you have a bicuspid aortic valve, you only have two cusps. Probably a bicuspid aortic valve but there are many other possibilities Reply The problem is I have developed an aneurysm on my ascending aorta of 44mm. Your web site and the links have much good information. But, three heart valve surgeries! ), Your email address will not be published. So my question: does there appear to be any performance advantage of tissue valves over mechanical or does the fact that Im on the anticoagulant anyway make the mechanical valve sort of a no brainer choice? Thanks so much for all this info! I do not do any kind of sport and I want to have healthy life at make sure my situation not getting worse and I weight 90 kg. You have a good understanding of the issues. Bicuspid aortic valve (BAV) is a genetic condition that causes the aortic valve to have two leaflets instead of three. After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. His exercise stress test on 8/5/16 was fine. My surgeon says that the aneurism and bav go together. My father has struggled with heart disease since he was 50, and I lost him [in 2008].. I didnt get it.". It is very informative. Just a short info for whomever may read, I searched for Tims name and I found this page: I am now down to seeing my doctors every 3 years or so and have been doing very well. Is it possible that the valve will get loose? I cant distinguish if its muscle pain or somewhere inside chest, its not sharp or dull, somewhere in between. And, of course, its important to monitor over time the function of the prosthetic aortic valve and the size of the aorta. The average lifespan for a cow valve or pig valve is about 10 to 15 years, according to the Cleveland Clinic. mod-severe regurgitation The studies on Irbesartan for Marfans(I dont have Marfans) are showing some positive outcomes; and. My doctor says i use losartan for decrease my blood presure. diagnosed wid BAV AND AS WITH AR Thank you for your time. There are simply no reports that describe the experience of athletes returning to ECer ise (or training) after aortic dissection. Advertisement. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. Still no stenosis or regurgitation, aorta now 35 mm, he is 6 ft, 150 pounds. If you wont we can share experiences about healing and progress, its pretty much same situation. Search for heart hospitals that specialize in heart valve treatment. Did you run? Some people with bicuspid aortic valve will have symptoms in early childhood. My sinus of valsalva is at 4.8 and my BAV is functional (discrete regurgitation). "Schwarzenegger's pulmonic valve was successfully replaced.". Thank you for your assistance in this matter. The star's mother, Rita Owens, was diagnosed with heart failure after passing out while teaching art at a New Jersey high school in 2004. Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three.If untreated, it can lead to blocked blood . Im used to long runs up to 12 miles at an average 6 minute per mile pace as well as fast interval and farther training. He just turned 15 he is 511 203 lbs and has a heart of gold. It can also lead to aortic stenosis , and is more . "Heart disease is the number one killer of all Americans, the number one killer of African-Americans and the number one killer of women, so I shouldve been put on notice since Im three-for-three. Ten years ago (2006), doctors said that there was a worsening of the BAV but still no need to have Aortic replacement. Very often, the specialists office will make note of the patients problem and make appropriate decisions about whether routine or urgent appointment scheduling is needed. PS: I noticed that the option Notify me of follow-up comments by email doesnt seem to work. He has mild AS and AR and is otherwise asymptomatic. Check out Anthony DiLemmes blog, Anthonys Heart Valve Replacement Saga. His aorta is lightly enlarged. Hes a 30-year-old 8th grade science teacher, a cyclist and outdoorsman, who is chronicling his story with BAVfrom diagnosis, to evaluation, to preparations for upcoming valve replacement surgery. Sounds like youre on the right track with your upcoming visit with a specialist. Contemporary reports suggest that life expectancy with BAV is no different from the general population. I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events. A cadaver if valve is then used to replace his pulmonary valve. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. after surgery and was playing football again by September. Athletes will ask when they can return to their sports. Approximately 1%-2% of the population are born with an aortic valve that only has two cusps. I know I will need it replaced. I have only trivial aortic regurgitation. I am a 28yr old male, and Ive just found out about my BAV. Advice in this area must be individualized with your doctor(s). No enlargement of aorta or any other problems. Hi Dr. Creswell. Either way I often think my cardiologist looks at me as if Im nuts and that my current 175 miles a week training should be thought of as beyond expectations post open heart surgery. How much worse does it have to get before it should be replaced? We generally limit weight-lifting (or other sports/exercise that have a high static component) for athlete patients with BAV and mild enlargement of the aorta. Thanks very much. I dont want to do any damage or compromise my homograft as the last surgery was a very difficult recovery. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. Data from these studies supported the U.S. Food and Drug Administration's approval of TAVR for low-risk individuals - replacing a narrowed aortic valve through a small incision in a procedure . We are now seeing moderate stenosis, hence replacement in the not too far distant future. The actress, 44, found out she had a leaky valve in 2002. Join Vanity Fair to receive full access to VF.com and the complete online archive now. I had a scan done recently and they picked up a what they called a mild dilation of the aortic root at 47mm, ascending aorta 34mm, no other issues. Medical therapy may be useful to slow or halt the progression of aortic valve disease and aortic enlargement by reducing the blood pressure and the blood pressure across the aortic valve. BAV is present at birth (congenital). While i appreciate you are not my cardiologist and we`ve never met is there anything generic out there that i can look at to gain an idea. In 1997, Dr. Starnes led a team of three surgeons who replaced the aortic valve in then-actor Arnold Schwarzeneggers heart. Common symptoms include chest pain, shortness of breath, dizziness and fainting. , Bicuspid Aortic Valve Disease, Acquired Valve Disease. I just want to know what things I will see change so that I dont look past the change in my valve and miss my window to get the valve replaced. I am big for my age . Yoga is not included in the classification of sports that is commonly used, but I suspect that yoga would have low to moderate static and dynamic components. Thank you so much for your clear explanations. I too would be interested in talking off-line about what I have experienced or finding docs who have studied more extensively at fine-tuning high performance engines. Pop Medicine > Celebrity Diagnosis . Celebrities With Heart Disease - Celebrity Heart Health Survivors. Obviously, mild to moderate would be somewhere in between. This is amplified when I sit with my feet up (male cross-legged) because of the tingling/numbness in feet. After an echo and an MRI with and without contrast, I found out that I have a BAV with mild aortic and pulmonic valve regurgitation. I am followed every 2 years. Thanks for sharing an update. The doctor looked at the results and told me to limit physical activity (running), because it can lead to heart failure in future. Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. O'Donnell suffered a heart attack in 2012, and wrote about her experience on her blog. This is the way I can help. Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. But thats just anecdote. It is two to three times more common in males than in females. No changes in regurgitation status (aortic regurgitation LVOT 19%); As I have aged I have upped the reps to 15 or more and two or three sets max, sometimes doing a set or two of 5 reps with heavier weights. Today at my hospital, we do most 1st time aortic valve replacements for aortic stenosis (narrowing) this way and have started using TAVR for patients with previous AVR using tissue valves who need re-replacement. They seem very busy and its taken almost a year to get to this stage. Depending upon the size of the prosthetic valve, there is so e built-in obstruction to blood flow that is e aggregated during exercise. Since I started running, I lost about 8 kg, my blood pressure decreased from 140/90 to 120/80-70. Im highly considering this option, after 4 months of research and appointments with doctors. Aortic replacement. I used to do HIIT and moderate to heavy weight 5 days a week before my physical complications. I wonder if there is also a psychological factor involved. Hey was born with BAV and moderate regurgitation and stenosis, and dilatation of his ascending aorta. I am 31 years old and had my BAV repaired at The Cleveland Clinic in 1999 when I was 15. Anyway, I will continue with running as much as I can, and now I have an excuse for my lousy performance. This award-winning website has helped over 10 million people fight heart valve disease. My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. If so, youre far from alone. The aortic valve lies between the heart and the aorta, the main artery . Since then I completed several 10k races and one half-marathon. While I do not work out regularly, my job as a construction worker is somewhat strenuous. Aortic stenosis and bicuspid aortic valve (BAV) He wants to be normal. We dont know what to do. There are four valves of the heart, which are divided into two categories: Atrioventricular valves: The tricuspid valve and mitral (bicuspid) valve. His doctor did not restrict him, but suggested that it may be time to give up the high-level play due to its high intensity training aspect (based on the Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. We use surveillance (you mention every 6 months) because usually problems with progressive enlargement of the aorta or with the valve itself can be picked up before there is any lasting harm. The GOPs failure to get the 118th Congress going shows how the performative nature of todays Trumpified party is making it incapable of governing. Thank you for best websit. Lynn. An echocardiogram last June revealed a function BAV. Over time, there will be some patients who develop problems with the prosthetic heart valve or enlargement of some portion of the aorta (that hasnt already been replaced) that requires operation. CT or MRI may be more accurate. The abnormal anatomy of the bicuspid aortic valve is complex, and a classification schema of 3 anatomical types has been proposed by Sievers and Schmidtke. The bicuspid aortic valve opens and closes abnormally, and can result in leaking of the valve. Over time, these patients need to be monitored for continued proper function of both the pulmonary valve (that was borrowed) and the new substitute for the pulmonary valve. Im 53. Im not sure theres enough information at hand to offer sound advice. The rest of the aorta is normal (visualized to just above the bifurcation in the abdomen). This is thought to occur at a rate of about 0.1% per year in adults. I can not be on anticoagulant medications on the fire department. triangle chokes, other blood chokes) could be putting pressure on my heart and cause my aorta diameter to increase? One doctor to told me just to control it and train as I like but the other one said that with those hearts parameters I will have only 1-2% to have operation in the future but if I will continue to do triathlon for sure I will have to have one. "I had been doing some work around the house working with a heavy ladder, he told PEOPLE of his activity in the days leading up to his heart attack. Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. In general, the larger (in diameter) the substitute valve is, the less aortic stenosis it will produce. This blog helped me a lot in my panic days, it put me at ease when I was worrying to much, just to see and to know your enemy and to realize that you are not alone is great help. Hi again Dr. Creswell, I take BP medication namely Amlodopine & Ramipril which has lowered my BP. Dr. Creswell, Thank you for the follow-up! For healthy individuals who have BAV with no other heart or aortic problems, follow-up imaging with echocardiogram and/or CT could probably be undertaken annually, or perhaps less often once stability is ensured. I was hoping that if the ultrasound numbers dont change much, the endurance will not decrease significantly. 2) According to your explanation I rather not do cycling sports, but can I have low intensity sport like cycling or swimming twice a week for 90 minutes each, or 3 times for 60 minutes? My cardiologist Said to not lift heavy weights. Ive got my results from my recent echo and a lot of normals on there but main things were regurgitation and stenosis were mild with the aorta measuring about 33mm. Most patients can resume all of these activities by 2-3 months after operation. As a result, the valve doesn't function perfectly. Really helpful. Surgery. ( I was much worse though). They dont know they have it [It] leaks blood. I was just curious if there any way to know if my valve is affecting my times at all? They said that everything is working fine except that I have a slightly enlarged aorta and the very beginnings of an aortic aneurism which most likely occurred PRIOR to surgery as a result of the pressure over the years and my old BAV. Probably wise to follow the advice of your doctors who know the details of your situation. The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three. It is very frustrating as my doctor would prefer to see me live the rest of my life with restrctions and have the aneurysm stabilized rather than take a chance on surgery and possibly returning to my normal lifestyle. Maybe you can help me with some questions. Thank you so much for all of this insightful information. I think you understand the guidelines correctly. I do not know aorta measurements. I am a marathoner with BAV and no other cardiac issues. I think hes amazed by what I have described for my workouts of 65+ mile rides several times a week. So for that first month, we usually advise no driving, lifting, pulling, pushing, reaching, etc. When Ive had patients in your situation, Ive usually recommended getting the screening when its CONVENIENT. She says now it is stable and I dont have to see her for 2 years. The incidence of bicuspid aortic valve and complications. there was a tiny strand of tissue on the septal aspect of the muscular LOVT (LCOT Vmax 2.1m/sec;20mmHg peak gradient. I have a 15 year old son with a BAV, Aortic stenosis, Noderate regurgitation and dilatation of his ascending aorta. when I discussed this with my Dr. he reassured me that its not my heart causing it. So it is very possible to continue athletic activities after surgery. In fact, in some people they can go undiagnosed for years. I had a Bentall with mechanical valve done in Feb 2017. Questions currently remain about how long such repairs will last and whether patients might require re-operation at some point in the future. Your sons cardiologist would seem to be in the best position to offer specific advice. Many thanks. They are located between the ventricles and their corresponding artery, and . Last week I visited a doctor and here are the changes for the last year (before|after): You can contact me on zdenkokosutic@yahoo.com. They all underwent aortic valve replacement. Flaps of tissue on the valve open and close with each heartbeat. I have ramped up my walking to 30 minutes, keeping my heart rate under 100 bpm. The tragic event's silver lining was that it caused Latifah, 46, and her mother, 67, to bond.